Rare Chromosome Disorder Awareness Week
17 – 23 June 2018 is Rare Chromosome Disorder Awareness Week – a week with the important mission to raise awareness about rare chromosome and gene disorders, and to shine a light on the individuals and families affected by these disorders and how for them, rare is normal.
We want to be part in raising awareness and supporting people affected by rare chromosome disorders across the UK, and to do that Team Goodwille is running the British 10K in Westminster, London on 15 July 2018 to raise money for UNIQUE – a charity with the mission to inform and support anyone affected by rare chromosome and gene disorders.
Charity, fundraising and spreading information on important causes are very close to our hearts at Goodwille, and we hope that by raising awareness of rare chromosome and gene disorders and donating to UNIQUE, we can make a difference to individuals and families in the UK.
Help us make a difference – support #TeamGoodwille in the British 10K and donate to our cause. All donations and contributions, however large or small, make a real and lasting difference.
Follow the fundraising journey – from running practise to fundraising activities on Instagram. Thank you for your support.
Unique provides much needed help and information to those caring for a family member with a rare chromosome disorder. These lifelong disorders affect 1 in 200 live-born babies and those affected are often sick and severely disabled, unable to walk or talk. For more information see www.rarechromo.org